Our son Nicholas is one of the happiest kids you'll ever meet. He has low muscle tone, or hypotonia, which is a symptom and not necessarily a disease itself. He has global developmental delays and is currently in physical, speech, occupational, and developmental therapy. He has a list of other symptoms, but no solid diagnosis yet. We have been incredibly lucky to have such great therapists and a daycare provider who are so dedicated to working with him. He's making great progress, but still has a long way to go.
We wanted to start this blog to begin posting about the things we have learned so far through his therapies, our experiences, sharing toys that helped him and how I've learned to navigate through the medical system. Hours and hours of work, research, successes and sometimes failures have helped us get to where we are today.
Please send me any questions or suggestions you might have and I'd be happy to share our experiences. It can be a lonely feeling to find yourself with a hypotonic child without a diagnosis, but it doesn't have to be......
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